tag:blogger.com,1999:blog-8749436707205297492.post3928577421021189255..comments2023-05-19T15:30:01.828+01:00Comments on Chris's Cancer Community: The joy of sharing experiences Chrishttp://www.blogger.com/profile/05208572330195914101noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8749436707205297492.post-17148631294333892912013-02-01T16:35:15.573+00:002013-02-01T16:35:15.573+00:00Hi Anna
Your own personal experience, is a perfec...Hi Anna<br /><br />Your own personal experience, is a perfect example of what I am talking about.Your group would never have been born if you were waiting for the system to help you. Sure it isn't the same as face to face support, but a lot better than nothing at all! In fact my experience, is telling me that people are enjoying this type of 'remote'support, as they can be as active or passive as they like, and remain anonymous if they so wish.<br /><br />I love the work that Imerman Angels does, as they try and match up, as close as they can, disease, treatment, sex, age etc. You should be very proud of that work, as I know you are.Well done to Jonny and his team. Yet another example of support expanding through social media. Good luck with that work.<br /><br />As always Anna, many thanks for taking the time to comment, and I'm really pleased you are enjoying the blog. Many thanks for sharing, ChrisChrishttps://www.blogger.com/profile/05208572330195914101noreply@blogger.comtag:blogger.com,1999:blog-8749436707205297492.post-7774144514441096132013-02-01T12:30:50.354+00:002013-02-01T12:30:50.354+00:00Chris,
I concur, again! My own journey, being dia...Chris,<br />I concur, again! My own journey, being diagnosed with a rare cancer, Cystosarcoma Phyllodes, meant that there was very little information and the 'usual' support networks knew less about it than I did! Through the internet, I sought out others who were diagnosed and we now have a support group in Facebook (shortly to be on the www) that has over 430 members from around the world sharing experiences, holding hands and supporting one another.<br /><br />I am also a Mentor Angel with an organisation Imerman Angels. Set up by Jonny Imerman when he felt that peer to peer support played an important part. They aim to match newly diagnosed individuals with 'Mentor Angels' with the same diagnosis. My role as an Angel is to support, to listen, to share, to signpost and to guide. We chat via Skype, in person, by email and over the phone. I have been talking to Jonny about increasing the presence in Europe (they're based in Chicago, USA). Have a look at their work - http://www.imermanangels.org/ I've also spoken to a number of charities and NHS organisations about Imerman Angels and one London hospital is discussing it with their nurses about a point of referral.<br /><br />BTW You're fabulous... thank you xxxAnonymousnoreply@blogger.com