tag:blogger.com,1999:blog-8749436707205297492.post7740083156770858906..comments2023-05-19T15:30:01.828+01:00Comments on Chris's Cancer Community: Cancer Patient Experience in the N.H.SChrishttp://www.blogger.com/profile/05208572330195914101noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8749436707205297492.post-83414026039847790652012-09-09T11:41:11.732+01:002012-09-09T11:41:11.732+01:00Hi Shirley
The difficulty with large organisations...Hi Shirley<br />The difficulty with large organisations such as the health service,is that it has to adopt a 'one size fits all type of policy', which leaves very little room for individuality.We have also addopted a 'compensation society' where staff always tread the 'safe'route for fear of formal complaints etc.<br /><br />My experience has shown me that most patients need some time, and a sympathetic ear, not always specialist counselling! However, I have also found that a lot of staff, even in oncology are not comfortable talking with patients about issues arising from a cancer diagnosis.<br /><br />I know this might sound crazy but it is what I have found. Certainly there is a time element,in a hospital setting.But everyone of us reacts differently to that sort of news, and unless you are very experienced at dealing with people, you could find yourself in a tricky situation.so the routine route would be to give you numerous books and papers and hopefully you can find the answers there.<br /><br />The point you raise about email, is a valid one.However, in many instances, written communication can be misunderstood, and there is not really room for explanations,if required.What your experience shows is that we all need something different from our hospital experience, and it is really up to the staff on the front line, to judge how each individual patient requires their information.<br /><br />I started this blog because I realised that the traditional way of communicating and receiving support is rapidly changing. People prefer being able to log on, at a time that suits them, when they are feeling well enough. Some people prefer to be anonymous, others not. Some people like to write comments, others don't. The choice is their own. This is not intended to replace the personal, one to one support, but maybe complement it. <br /><br />It is possible that dealing with your illness, will remove some of your shyness, have you thought about that? Thanks again for you comments and I am glad that you are finding this blog a useful tool. <br /><br /><br /><br />Posted by Chris to Chris's Cancer Community at 9 September 2012 11:28 Chrishttps://www.blogger.com/profile/05208572330195914101noreply@blogger.comtag:blogger.com,1999:blog-8749436707205297492.post-56909030634641961962012-09-08T17:30:10.799+01:002012-09-08T17:30:10.799+01:00Chris, I agree with you I feel they do need to mov...Chris, I agree with you I feel they do need to move more with the times, I was given the card of the specialist nurse, I was invited in to go through things with her, which I did, told I could ring and ask anything, no matter how small, but the thing is I am quite shy, and although I have done it, I didn't find it easy. I felt I didn't want to bother her or even tongue tied. I can't helping thinking that maybe email could be used in some way. Shirley https://www.blogger.com/profile/06181912819750287871noreply@blogger.com